13 April 2022



The Challenge


A brother, Mr. E  and sister, Miss E  have a rare form of muscular dystrophy, a degenerative condition meaning they will both need

increasingly high levels of care over their lives.


They live with Miss E’s teenage daughter and retired parents – who administer the bulk

of their care. In September 2012, the family was referred to Care and Repair because it was becoming

increasingly apparent that Mr. E and Miss E could no longer continue living in the house

– a standard

three bed semi-detached house in Leeds.


Both had growing care needs and increasingly restricted movement – indeed, Miss E

had already fallen several times attempting to climb the stairs. Their parents knew

their home must be adapted

– for the safety and security of their children.


Their father said: “Miss E likes to do things herself but it was reaching the stage where we had to

physically push her upstairs. As a retired couple ourselves, we just couldn’t manage anymore.

We were worried

what we would do if anything ever happened to us.”


“It was getting very difficult because we were all living on top of each other and

this was taking a harder toll on the whole family,” said their mum. “They needed

increasing amounts of care and

with a teenager in the house growing up and wanting their own space too – you

can imagine how difficult that was.”

The Solution

With the family moved out, work started in earnest in July 2013. After gutting the house, Care and Repair contractors reworked the whole of the downstairs and upstairs living spaces – making the home more

open plan and wheelchair accessible. This involved widening all the internal

and external doorways, creating an additional living area downstairs, increasing

the circulation space throughout,

providing a new utility room and building a new light and airy extension to the

back of the house to create extra space.


Care and Repair contractors also designed and fitted a through-ceiling lift to the

upstairs rooms and reworked the upstairs living areas to accommodate

two large bedrooms to give Katie and Stuart their own spaces and a large, fully adapted

disabled wet room with the latest equipment. Contractors also completed a full loft conversion to ensure

everyone could have their own spaces.


Mrs E (mum) said: “Living here is going to change our lives. We’ll all have privacy

and extra space and the safety of the lift is going to be a real peace of mind –

it will make a huge difference to them –

and to the whole family.”


Outside the house, Care and Repair contractors reworked the front garden to

accommodate a parking space and a ramp that will enable Mr. E and Miss E to move easily into the house. The

works also included converting the loft into bedrooms for the other family members who live there– to enable

everyone to have their own space.


Their father said: “We’re delighted with this option and how Care and Repair

have helped us through the whole process. They’re very experienced and

know what they’re doing. As soon as they became involved things

started falling into place – it’s been a pleasure working with them. We’ve all got our

own little places and it’s going to be a big improvement. We can live together as a family again now – it’s unbelievable really.”


Care and Repair also provided help through its Warm Homes Service to supply

the family with a new, up to date heating system. Working in close collaboration

with Care and Repair’s technical

team, the Warm Homes Service identified that the family qualified for financial

support from the government as their

existing heating system was inefficient and guided them through the complex

process of applying for grants.